Free NDIS condition guide
Fragile X Syndrome and the NDIS
Fragile X syndrome (FXS) is a genetic condition caused by a change (called a full mutation) in the FMR1 gene on the X chromosome.
Download the guide
32 pages, free, and we do not ask for your email address. The last four pages are a workbook you fill in and take to your planning meeting.
Download in EnglishPDF, 1.7 MB- Pages
- 32
- Version
- 2.0
- Reviewed
Other languages
- EnglishEnglish1.7 MB
- فارسیFarsiComing soon
- اردوUrduComing soon
- हिन्दीHindiComing soon
- ਪੰਜਾਬੀPunjabiComing soon
- العربيةArabicComing soon
- 中文ChineseComing soon
- Tiếng ViệtVietnameseComing soon
- TürkçeTurkishComing soon
- EspañolSpanishComing soon
- TagalogTagalogComing soon
Interpreters are free at every NDIS meeting. Call TIS National on 131 450 and ask for your language, or ask us to arrange one.
What is in this guide
6 sections, written around fragile x syndrome rather than the NDIS in general.
- 01page 04
About Fragile X Syndrome
- 02page 08
The NDIS basics
- 03page 15
Your supports
- 04page 19
Why InLife
- 05page 22
Resources & next steps
- 06page 27
Your workbook
Who this guide is for
- People recently diagnosed with fragile x syndrome, or told they may qualify for the NDIS.
- Families and carers supporting someone living with it, who need the scheme explained once, clearly.
- Health professionals helping a person put an access request together.
- Support coordinators looking for something plain to hand a new participant.
This guide is general information, not clinical or legal advice. Funding decisions are made by the NDIA, and no provider can influence them.
Where to go next
The guide explains the scheme. These pages explain what we actually deliver.
Daily Living Support
Personalised assistance with everyday tasks so you can live comfortably and confidently in your own home.
Learn moreCommunity & Social Participation
Building connections and confidence through social outings, recreational programs, and community engagement.
Learn moreAllied Health Coordination
We connect you with trusted allied health professionals and make sure their therapy strategies actually happen in your daily life.
Learn moreEmployment & Training
Supporting your journey into meaningful work through skills development, job readiness, and ongoing workplace support.
Learn moreOther condition guides
Same format, written around a different condition.
Talk it through with someone
Reading about the NDIS and getting a plan built are different problems. We are a registered NDIS provider working across Victoria, and we are happy to answer questions whether or not you ever become a participant with us.